Where have we been?

We have spent much of the last week here...
in the beautiful valley of my ancestors aka Eden and Liberty, Utah. My amazing cousin Josh lives here and his family introduced us to a possible non-invasive treatment option for Crewe. We went to learn more about it and see if showed any promise of being effective for Crewe's condition.

Crewe underwent diagnostic testing and his first treatment on Monday. Treatments continued daily through Friday. Measuring Crewe's progress is difficult since he can't describe to us what he feels. We haven't noticed any significant change in the size of his face, but we have noticed a small reduction in the size of his tongue and an increased ability to stand for longer periods of time. It's likely that he needs more treatments in order to see the real potential of this medical approach. We are considering going to Dallas to meet with the doctor that developed the approach.

While we were in Utah we got to spend some quality time with my family and extended family. More to come on those adventures...