Baby Crewe Turns 2 Months Old

It’s hard to believe our little Crewe is two months old today.  Despite spending 30 days of his short life in the hospital, he is showing amazing development and passion for life.  He is also gaining weight at a very healthy pace, putting on 17 ounces in the last two weeks alone to bring him to 10 pounds 3 ounces. 

 Here are some of his highlights: 

• LOVES to be held
• Smiles a lot, which makes his cheeks get even bigger
• Holds his head up unsupported
• Actually enjoys tummy time (unlike his older brother did)
• Eyes are turning really blue and getting bigger
• Very expressive with his face (he can often be seen giving his dad the “worried look”)
• Is super alert and loves to follow faces and noises with his eyes 

So, what’s next? 

Tomorrow Crewe’s case will be presented to 12-15 doctors that form the Vascular Malformations Clinic at Phoenix Children’s. The doctors, ranging from pediatric plastic surgeons, dermatologists and orthopedic surgeons to interventional radiologists, will collaborate and recommend a long-term treatment plan. 

The “clinic” was just formed a few months ago and is one of only a handful in the country that focuses on anomalies like Crewe’s. One of the lead doctors in the group comes from the Children’s Hospital in Philadelphia, which is known for its treatment in these rare cases. We feel so grateful that Crewe’s case was accepted by the group. 

Then, on Thursday Crewe will go in for another round of sclerotherapy at Phoenix Children’s Hospital. This round is scheduled as outpatient so we should be able to avoid an overnight stay at the hospital. 

As Chris and I reflect on the past few months, we feel so thankful for friends and family who have gone above and beyond in lending us a hand. Your prayers have been such strength and we know that Crewe’s progress is a direct result of faith. Thank you.