A Bump in the Road

During his first five days of life, Crewe was making great progress. He was breathing entirely on his own, learning to eat from a bottle, and gaining weight.  We were feeling very encouraged especially as the hospital called and asked us bring in a car seat to test positioning.

On Wednesday things changed.  Crewe was clearly struggling to breathe and didn't have his normal pink coloring.  Apparently, the cysts in his neck were growing and cutting off his airway. Within just a few hours, Crewe was transported from the McDowell campus of Phoenix Children's Hospital to the Thomas campus and found himself in the operating room with the doctors trying to secure his airway.

Fortunately, the doctors were able to intubate Crew as the alternative was a to perform a tracheastomy.  Crewe and his parents all breathing a little better since the operation. 

The intubation is just a short-term fix for his breathing.  We are talking with the specialists  to establish short-term, mid-term and long-term plans.